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The Iranian Thalassemia Society was founded by doctors and parents in 1989.The sixth board of directors of the Society received it on the 25 Dec.2004.At the beginning the board of directors met with a lot of problems including:

1- The bankruptcy of many governmental (public) hospitals due to their self management which caused the closure or limitation of Thalassemic patients wards , and created problems in the way of supplying services and equipments.

2-The shortage of the Society's cash assets compared to its debts.

3- The Society's credibility decline from an authority programming aggregate to a social aid fund.

The sixth board of directors tried to obviate these problems and improve patients' therapeutic criteria. Also we tried to reform the infrastructural of the society.

Te most important activities of this society are:

•  To present a program for guidance of subsides and decrease of unnecessary expenses for thalassemic patients and to eliminate dubious expenditures:

This was achieved from the beginning of the society's work by establishing continuous meetings with deputy and counselor of the minister of welfare and social security and finally the deputies committee of this ministry sanctioned the organization grid of specific patients and allotment of intelligent cards to these patients. We hope that this program will result exactly as the society scientific and practical principles suggested.

•  Collection the exact demographic information of thalasemics:

At the beginning of the sixth board of directors” work the databanks of Iranian Thalassemic patients were incomplete and they were they were reported between 15000 to 35000 but since supplying the exact information is very important for programming, this society tried to provide exact demographics data of patients. Owing to the reports there are 18649 patients and this is the most exact statistics of data banks of thalassemic patients. Nevertheless the establishment of a patients' information network is needed.

•  To direct the instance payment to patients:

At the beginning of our job many payments were given to patients without any policy or criteria. We tried to explain clear criteria for our payments to patients and most of our financial support belonged to treatment costs.

 

•  Direct connection with governmental organizations which are involved in Thalassemia medical needs.

These mutual projects in the field of Thalassemia were performed by strengthening the connection with Iran Blood Transfusion organization and insurance companies. These projects included publicizing and propagating continuous blood donation and establishing coordinated programs for distribution of medical facilities for the patients.

•  Installation of periodical educational workshops in different provinces of the country:

One of the delayed programs of Iranian Thalassemia Society was training of patients and their family. We decided to install these workshops in different provinces of the country which included Tabriz , Kermanshah ,Guillan,and karaj workshops.

•  Publication of seasonal magazines continuously and legitimately:

In the past these magazines were printed irregularly and headless to the country's laws regarding internal bulletins, but we tried to print them continuously and legitimately.

•  Edition of a comprehensive program :

In this field, the programming forms and the manner of filling were provided and sent to different departments of the health ministry and welfare ministry.

•  Communication with the scientific associations of the country:

Iranian Thalassemia Society has tried to change from an unscientific organization to a coordinator of the country's specialized community in the field of therapeutic-scientific theories presentation. Now this society is known a real coordinator by all specialized associations of the country.

•  Establishment independent provincial branches:

We have tried to establish independent and selected manner branches of Iranian Thalassemia Society in all of the country's provinces .Establishing branches in deprived provinces like Ilam, Sistan and Balouchestan are the results of our work.

•  Financial clarification:

We changed the society from an indebted organization to an organization with financial backing. This was done by reducing current expenses and the personnel of the society office. However we increased therapeutic and educational expenditures of the society. We established a clear policy and criteria for our payments to patients.

The numbers tell our tale.

•  Recreational tours and welfare programs for patients:

In this regard we distributed a number of theater and tele-cabine tickets and held three camps in Namakabroud, Tange vashi and Tochall for patients.

•  Arrangement the new constitution for the Iranian Thalassemia Society:

In this constitution, all the provincial branches have the right to vote at the society assembly, in proportion to the number of their patients. That is why this society has become a democratic and elected society in Iran .

•  Starting a plan for providing safe blood for thalassemic patients from multiple known donors with the aid of Iran blood transfusion organization .

•  Active participation in collecting the weak points of the Thalassemia prevention program .

More...

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18 اردیبهشت

 

 

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Mazandaran

MISSION : Sari thalassemia society as a member of Iranian thalassemia society is a NGO which has been established to improve the living condition of thalassemic patients and their families .We support local and national activities to providing better treatment for local and all patients of the country .We support all basic and applied researches to find better treatment and prevention. We inform and motivate affected families, other members of society to consider thal. Patient's right to have the best available treatment and accept them as capable, responsible and active members of Iranian nation

VISION : We slould be the best and most successful branch of Iranian Thal. Society

VALUES : We believe on Islamic and Shiee values which are the highest standards of human rights .We believe in God the most compassionate the most merciful

History: Mazandaran branch of Iranian Thal. Society has been established in 1989 in sari.   Provincial religious and administrators (Board of trustees) who supported the society are as follows:

  • The respectful "Emamjomeh" of Sari
  • The head of religious society
  • The head of Mazandaran University of Medical Sciences
  • The head of National Blood Transfusion Service of the province

The last election for board 0f directors was done in 2002, currently board members consist of:

  1. Prof. Mehrnoosh Kosaryan (President)
  2. Mrs. Maryam Moghbeldoost (patient, vice president)
  3. Miss.Ghodsieh Jafarian(patient,tresurary )
  4. Miss. Zoha Mosavy(patient, secretary)
  5. Miss. Roya Ranjbar(patient)
  6. Mrs. Sodabeh Nil forosh(patient)

Gilan


Gilan Thalassaemia Society as a member of

Iranian Thalassaemia society is a NGO which

Has been established in 1993 .

The last election for board of directors was done in 2005.

Currently board member consists of:

  1. Dr. Sasan Bozorgifar (president).
  2. Mr. Mohammad Forozandeh.
  3. Mr. Massoud Mirzaei.
  4. Dr. Fahime Rahimi Bashar.
  5. Ms. Mahbobeh Pasandideh.

Esfahan

Esfahan Thalassemia Society was founded in 1995 by parents, patients and doctors. Its objectives/aims/principles are to relieve persons suffering from Thalassemia and standardization of their treatment and prevention in Esfahan province. Some of its activities include:

1- Promoting the authorities to prepare the best treatment for patients in a dedicate Thalassemia center,
2- Providing educational material for public awareness of the disease
3- Educational activities to improve compliance to treatment for patients.
4- Effort to resolve psychosocial problems of patients with a scientific approach.
This society financially is supported by donation of beneficence people.
Now Board of Director of the society are as follow:

  1. Chairman:Mohamad ali Khami (Medical staff)
  2. Managing Director :Abbas Barzegar(parent)
  3. Vice president:Mehdi Barzegar(patient)
  4. Treasurer: Mehran Khatabakhsh(patient)
  5. Secretary of board: Mina Jahanpour (Nurse)

You can contact us for any comment or donation by mail, Fax or email.
Isfahan Thalassemia Society
Sayedal shohada Hospital
Khayam street
Isfahan
Iran

Tel:+98(311)2345050
Fax:+98(311)2354343
Email:esfahanthal@yahoo.com

Isfahan Thalassemia Society account No.:2285 melli bank – bazaar honor branch-Isfahan

Khorasan

ranian thalassaemia society has established in 1989 and developed and we are on of it's branches in khorasan .

The aims of our society;

1 – The reduction of the birthrate of thalassaemic children through introduction of this genetic disease to people.

2 – Giving records of the social therapeutical and welfare problems of the patients to the responsible authorities and finding solution for these problems.

3 – Recognizing and covering the thalassaemic patients in khorasan .

The number of the patients in khorasan (northern – southern – and razavi khorasan ) is 494 .

We need to inform people and authorities about

1- The condition of married couples.

2- To diagnose this disease before birth.

3-abortion – therapy,

The members of the board of directors are shown by voting the last members of board are;

1 – Dr. Sedighe gooyandeh (president)

2 – Ms. Maasomeh layegh raana (vice president)

3 – Mr. Ahmad tajik

4 – Mr. Abas Ali nick khah

5 – Mr. Masoud shaiesteh

  Tehran thalassaemia & cycle cell society

  ne of the best and initial grand policies of Iranian thalassaemia society is the division of province duties about the regular activities of patients from central office of Iranian thalassaemia society.

Therefore, the Tehran thalassaemia & cycle cell society (t t s) started its duty by end of the voting ceremony at 26 / 11 / 1384 local association of Iranian thalassaemia society.

This is an ungovermental organization in which firstly its activities are unpolitical secondly their duties are limited in Tehran province.

Tehran thalassaemia society has set up to collect several beneficial ends for tehran thalaassaemic patients. Some major (t t s) ends are:

•  To supply health situation for thalassaemics through whole Tehran province.

•  to observe popular and also governmental assistance in the interests of Tehran province thalassaemics

•  To give cultural plans by setting up various domestic workshop and to deliver the latest thalassaemia news too.

•  as you know , the members of the board of directors are shown by voting on 1384 bahman month 26 the , the t t s members of board of directory are :

•  Mr. Habib kazemi ( president )

•  Mr. Ali abadi ( managing director )

•  Dr .Hojat afrady

•  Ms. Fatima khani ( vice president )

•  Mr. Shahram sadoghi

At last, all of patients who live in Tehran province can register to be one the member of Tehran thalassaemia society.

Azarbaijan Sharghi

Azarbaijan Sharghi   Thalassaemia

Society Was Founded in 2005

The last election for board of directors was done in 2005

Currently board member consists of:

1- Mr. Mehrdad Farhadi (President)

2- Ms. Zahra Faraji (Vice President)

3- Ms. Solmas Anvari

4- Mr. Masoumeh Salmanpour

5- Mr. Hosein Piltan

Ardebil

Ardebil Talassaemia

Society Was Founded in 2005

The last election for board of directors was done in 2005

Currently board member consists of:

1- Mr. Habib Ahmadi (President)

2- Mr. Reza Rezaei (Vice President)

3- Mr. Behrouz Keramati

4- Mr. Mehrdad YektaPour

5- Mr. Behzad Ramezani

Golestan

Golestan Talassaemia

Society Was Founded in 1992

The last election for board of directors was done in 2005

Currently board member consists of:

1- Dr. Seyed Ali Mirrezaei (President)

2- Mr. Haj Mosa Ehsan Bakhsh (Vice President)

3- Mr. Gholam Ali YaghobPour

4- Ms. Batoul Keyvani

5- Ms. Narges Ayazi

Kermanshah

Kermanshah Talassaemia

Society Was Founded in 2003

The last election for board of directors was done in 2005

Currently board member consists of:

1- Dr. Zinati Tabar (President)

2- Mr. SaeedRahmat Abadi (Vice President)

3- Mr. Hamid Nekonam

4- Mr. Javad Hematgar

5- Mr. Mostafa Khani

Khouzestan

Khouzestan Talassaemia

Society Was Founded in 2003

The last election for board of directors was done in 2003

Currently board member consists of:

1- Dr. Sadeghiyan (President)

2- Ms. Mahnaz Ijad (Vice President)

3- Ms. Mehri Meshkin Nejad

4- Ms. Hale Khozadi

5- Mr. Abdola Hosein Majidizadeh

Qom

Qom Talassaemia

Society Was Founded in 1998

The last election for board of directors was done in 2006

Currently board member consists of:

1- M r. Reza BahAbadi (President)

2- Ms. Hakimeh Barzegar (Vice President)

3- Mr. Beheshti

4- Mr. Ali Asghar Farmani

5- Mr. Mohammad Sadegh Jafari

Sistan & Balochestan

Sistan & Balochestan Talassaemia

Society Was Founded in 2005

The last election for board of directors was done in 2005

Currently board member consists of:

1- Prof. Mohammad Taghi Tabatabaei (President)

2- Mr. Alireza Oudi (Vice President)

3- Mr. Vahid Shahnavazi

4- Mr. Mehdi Rakhshani

5- Ms. Maryam Riyi

Markazi

markazi Talassaemia

Society Was Founded in ...

The last election for board of directors was done in...

Currently board member consists of:

1- Mr. Masoud Fayaz(President)

2- Mr. Shahrbano Azizi (Vice President)

3- Mr. Mostafa Malek Hosseini

4- Mr. Majid Fath Abadi

 
 
 
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